Brendon has been feeling strange lately. Sunday afternoon he was saying that his throat hurt so we looked in his mouth and saw lots of white stuff in the back of his throat. We called the doctor's office on Monday, described the symptoms and they figured that he had thrush. They called in a prescription and he started taking it right away. One of our home health nurses came to draw Brendon's labs again on Monday night. She looked at his throat and said it was definitely thrush. Thrush is a relatively common side effect of some of his medicine. Tuesday morning we received a phone call from a nurse at the clinic asking how Bren was feeling. She said that his sodium levels were still down and he might start acting loopy. He has been very shaky and more tired than usual. He had his appointment for his chemo and checkup yesterday afternoon. His sodium has been low for a couple of weeks now and putting him on a fluid restriction isn't making it go back up. When Brendon's doctor (Dr. Rossi) gave him his checkup before the chemo she noticed how shaky he was. She had his labs drawn again to check his calcium and magnesium levels. She also decided to refer Bren to a pediatric kidney specialist. Brendon has an appointment on 10/9 with them. Dr. Rossi said that Brendon had low sodium levels before he started chemo so he may need to be on a medicine to regulate it, but it should go back to normal once he's done all of his chemo. The labs came back fine for his blood, calcium and magnesium levels. He did not go to school today. His mouth hurts, he hasn't been sleeping much, he's losing his appetite and his legs hurt. He looks fine, but we can tell he doesn't feel good. He wants to go to school, but we'd rather him stay home and rest when he's feeling this way...He actually slept at the clinic yesterday while he was getting his chemo for almost an hour. He hardly ever sleeps while getting his medicine. He has started to wean off the steroids and should be completely off them on 10/10/07.
Last night The Children's Museum of Maine presented an exhibit called Project Tomorrow. Brendon and 8 other kids from the Maine Children's Cancer Program participated in this project. The kids were asked to pick a subject to photograph who they felt would be or has been important in your life. Brendon chose to photograph his father. The Children's Museum have the photos on display along with some questions that the kids answered about their subjects. The subject was also asked to explain what being selected meant to them. It was a lot of fun and the pictures came out great! The photos are displayed on the walls of the stairways going to the second floor. They will remain on display until 11/4/07. If you go to the Project Tomorrow website you can see the photos that were on display. They all did a great job! Here are some pictures of the night....
244 comments:
1 – 200 of 244 Newer› Newest»Sorry to hear Brendon's not been feeling well. The drive to NH sounds great! We didn't really get to take a leaf-peeping trip this year, which was kind of a bummer... they were very pretty this year too. I think it's very special that Brendon chose his Dad in such an honor. I think of you guys all the time. I am praying that Brendon gets some relief from all the side effects soon. LOVE YOU GUYS.
I just read the "Project Tomorrow" site and viewed all the pics. - How incredibly precious and sweet... both the pictures and Brendon's words about his Dad.
Brendon you are my hero!
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